Hi everyone, and welcome to my 57th Crap Poem as part of the COPE campaign. First a disclaimer – I watch a lot of crap on the TV as a distraction. It seems, at the moment, I need distracting a lot. One of my favourites (and my partners, although he’d deny it!) is MAFS. What’sContinue reading “Crap poem 57 – Disability dating”
Category Archives: Myalgic encephalomyelitis
Pain bias – why is everything collectively coined as ‘backache’?
There are so many things to be frustrated about when you live with chronic pain and / or chronic fatigue. As soon as your pain becomes ‘chronic’, the level of explanation needed just to get across to family, friends, doctors, nurses, and healthcare workers, what you’re experiencing can mean that you spend most of yourContinue reading “Pain bias – why is everything collectively coined as ‘backache’?”
Crap poem 56 – Chronic Stigma
Hi everyone, and welcome to my 56th Crap Poem as part of the COPE campaign. This poem is a serious one, despite the rhyming. Let me start by explaining my reason for getting so worked up about this. As some of you will know, some of my more disabling diagnosis are ME/CFS, Ehlers Danlos SyndromeContinue reading “Crap poem 56 – Chronic Stigma”
Patience – I have none
Despite struggling with the act of ‘getting it done’, I hate delaying. If something is on my list, if a new thing that needs to be done appears, if information is requested of me and it needs to be sent over…I want it done… NOW. I feel for my family at times. Every now andContinue reading “Patience – I have none”
Mental illness emergency breaks – being brave enough to stop.
Since cave people prized open their bleary eyes at the dawn of human-time, readying themselves for another day of hunting and gathering, there was only ever one goal, one desire, one dream, for the end of their evening. Was it charring and devouring their fleshy prize? No. Was it seeing friends and talking about tomorrowsContinue reading “Mental illness emergency breaks – being brave enough to stop.”
Chronic Pain – a new diagnostic chapter
Well, it’s officially 2023 and I’m sure many of you are feeling as redundant as I am about what the future holds. These are not simple times. But my fear of external catastrophies, things I have absolutely no control over, has forced me to find the silver lining on every charcoal cloud. So when IContinue reading “Chronic Pain – a new diagnostic chapter”
Creative Steph 