***TRIGGER WARNING*** This post talks in detail about the current wait times for NHS care, as well as mental health treatments and physical health pathways. The post will touch on suicidal thoughts and the effect of delays in crisis care. Please only read on if you feel strong enough. You can find more information forContinue reading “Health support services – helpful tool or additional trigger?”
Tag Archives: eds
Pain bias – why is everything collectively coined as ‘backache’?
There are so many things to be frustrated about when you live with chronic pain and / or chronic fatigue. As soon as your pain becomes ‘chronic’, the level of explanation needed just to get across to family, friends, doctors, nurses, and healthcare workers, what you’re experiencing can mean that you spend most of yourContinue reading “Pain bias – why is everything collectively coined as ‘backache’?”
Dislocated life – coming to terms with my EDS diagnosis
The last six months have probably been some of the toughest I’ve experienced, certainly from a pain perspective. When I found out in early 2023, that my two Covid infections had left me with POST COVID syndrome, I assumed that most of the answers to my health problems would suddenly become clear. However, not everythingContinue reading “Dislocated life – coming to terms with my EDS diagnosis”
Finding cheap chronic pain solutions
Being uncomfortable and trying to mitigate my pain is a daily obstacle for me. I’ve saved up to buy heated pillows, expensive support cushions, feather filled large cushions and I’ve been given support wedges by social services. Despite all these options, I still found myself struggling to get comfy while sitting up. After less thatContinue reading “Finding cheap chronic pain solutions”
What do I eat my soup with?
I needed a different subject to take me away from my own ‘Brain Pain’ for a bit. Something outside of my head that wouldn’t force me to look internally and analyse my sanity (I do that too often). What did I choose? Well, it’s been kicking me in the kidneys for some time now. Pain.Continue reading “What do I eat my soup with?”
Chronic hobbies – one chapter at a time
I’ve been learning a lot since I started understanding more about the reasons behind my chronic pain and lack of mobility. Despite having multiple diagnosis that included degenerative disc disease and sacroilitis, pain and fatigue that occurred in different areas, such as my joints, arms, shoulders and legs, seemed to be an anomaly, and madeContinue reading “Chronic hobbies – one chapter at a time”
Stretching Myself
Post covid has been a nightmare for so many of us and in a variety of ways, with the severity of problems altering wildly from person to person Since I was diagnosed 6 months ago, my health nightmare has continued to unravel right up to last week, when I received a new diagnosis that I’dContinue reading “Stretching Myself”
Creative Steph 