In 43 years I can’t remember a Christmas that wasn’t exhausting. When I was 7, the excitement of seeing whether Santa had visited became unbearable around 5am. Like all kids, I was eager to discover what exactly he’d left for me under the tree. As a consequence, my parents and I had heavy eyelids andContinue reading “Chronic at Christmas – my best ideas for balancing the festivities with pain and fatigue”
Tag Archives: Myalgic encephalomyelitis
Crap poem 57 – Disability dating
Hi everyone, and welcome to my 57th Crap Poem as part of the COPE campaign. First a disclaimer – I watch a lot of crap on the TV as a distraction. It seems, at the moment, I need distracting a lot. One of my favourites (and my partners, although he’d deny it!) is MAFS. What’sContinue reading “Crap poem 57 – Disability dating”
Crap poem 56 – Chronic Stigma
Hi everyone, and welcome to my 56th Crap Poem as part of the COPE campaign. This poem is a serious one, despite the rhyming. Let me start by explaining my reason for getting so worked up about this. As some of you will know, some of my more disabling diagnosis are ME/CFS, Ehlers Danlos SyndromeContinue reading “Crap poem 56 – Chronic Stigma”
Chronic Pain – a new diagnostic chapter
Well, it’s officially 2023 and I’m sure many of you are feeling as redundant as I am about what the future holds. These are not simple times. But my fear of external catastrophies, things I have absolutely no control over, has forced me to find the silver lining on every charcoal cloud. So when IContinue reading “Chronic Pain – a new diagnostic chapter”
Creative Steph 