I needed a different subject to take me away from my own ‘Brain Pain’ for a bit. Something outside of my head that wouldn’t force me to look internally and analyse my sanity (I do that too often). What did I choose? Well, it’s been kicking me in the kidneys for some time now. Pain.Continue reading “What do I eat my soup with?”
Tag Archives: chronic pain
Chronic hobbies – one chapter at a time
I’ve been learning a lot since I started understanding more about the reasons behind my chronic pain and lack of mobility. Despite having multiple diagnosis that included degenerative disc disease and sacroilitis, pain and fatigue that occurred in different areas, such as my joints, arms, shoulders and legs, seemed to be an anomaly, and madeContinue reading “Chronic hobbies – one chapter at a time”
Chronic Fallout – the impact of mental illness and disability on carers
Took me a while to write this one. Whenever we are poorly, however long our illness takes to mend (if it ever will), whatever the health problem is, the load is infinitely lightened with the support of those around us. This week a nurse said to me “We’re concerned about the amount your partner isContinue reading “Chronic Fallout – the impact of mental illness and disability on carers”
Mental illness emergency breaks – being brave enough to stop.
Since cave people prized open their bleary eyes at the dawn of human-time, readying themselves for another day of hunting and gathering, there was only ever one goal, one desire, one dream, for the end of their evening. Was it charring and devouring their fleshy prize? No. Was it seeing friends and talking about tomorrowsContinue reading “Mental illness emergency breaks – being brave enough to stop.”
Chronic Pain – a new diagnostic chapter
Well, it’s officially 2023 and I’m sure many of you are feeling as redundant as I am about what the future holds. These are not simple times. But my fear of external catastrophies, things I have absolutely no control over, has forced me to find the silver lining on every charcoal cloud. So when IContinue reading “Chronic Pain – a new diagnostic chapter”
Healthcare Superheroes – great care makes a huge difference.
Yes, I can categorically confirm that top notch healthcare still exists and my goodness does it make a difference. Here’s the real news… Superheroes exist! I’ve talked a few times recently about the negative experiences I’ve had with healthcare and trying to root out some help with my pain. Although it’s been a long journeyContinue reading “Healthcare Superheroes – great care makes a huge difference.”
The Chronic Pain Cyclone – Agony to Misery
I know I talk a lot, loads, infinitely, about pain. But, as anyone living with chronic pain will understand, it’s impossible to ignore. It imapcts and defines every second of your existence as you try and navigate life without making it worse. You wake up at night without a moment to feel dopey because theContinue reading “The Chronic Pain Cyclone – Agony to Misery”
Chronic pain – the drugs don’t work
They just make you worse. You know the song, but imagine living it. Imagine relying on medication that isn’t effective when all you want it to do is allow you to get to the toilet without pain. For those of us living with chronic pain, this is the norm. Trial and error of prescription medicationContinue reading “Chronic pain – the drugs don’t work”
Finally I’ve found more Spoons!
My journey into Mental Illness is well documented, and although I sometimes talk about my experiences as a self-confessed spoonie too, I find it one of the more difficult subjects to write about. Firstly, if you’re unsure what I’m talking about (it’s ok, many people don’t know until they themselves or someone close to themContinue reading “Finally I’ve found more Spoons!”
Spoonie Press Article – Wheelchair Shame
It’s 8.11am on Wednesday morning, and although I thought I was mentally prepared for this moment, I found it difficult to compute when it actually happened. Today I woke up with my article on ‘Wheelchair Shame‘ in front and centre stage on the Spoonie Press website. It felt incredible and scary, probably in equal measure.Continue reading “Spoonie Press Article – Wheelchair Shame”
Creative Steph 